About Osteosarcoma
Osteosarcoma is a rare and aggressive form of bone cancer that most often develops in children, teens, and young adults. Understanding this disease is the first step toward making a difference.
What is osteosarcoma
Osteosarcoma is a rare and aggressive form of bone cancer that most often develops in children, teens, and young adults. It usually starts in the long bones of the arms or legs—especially near the knees or shoulders—and can spread quickly if not treated.
This X-ray shows Matt’s arm after limb-salvage surgery, re-sectioning and reverse shoulder replacement where a metal implant was used to replace the bone damaged by osteosarcoma.
an orphan disease
Because it is uncommon, osteosarcoma is considered an orphan disease, meaning it receives limited funding and research attention. This makes finding better treatments and cures especially challenging.
The need for research
CURRENT TREATMENT
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Most commonly affects children, teens, and young adults
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Typically develops in long bones near the knees or shoulders
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Can spread quickly without treatment
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Receives limited research funding as an orphan disease
Treatment typically involves a combination of surgery and chemotherapy, but survival rates and treatment methods have not significantly improved in decades. For families facing this diagnosis, the journey can be overwhelming—physically, emotionally, and financially.
The need for research
Through awareness, fundraising, and research, we can change the future for those impacted by osteosarcoma. Every story shared, every donation made, and every step taken toward research brings us closer to breakthroughs that can save lives.
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Together, We Can Make a Difference
When Matt was diagnosed with osteosarcoma, we had never even heard of it. No family should face this disease without answers, support, or hope. Osteosarcoma is an uncommon and fast-spreading bone cancer affecting mostly children, teens, and young adults. By learning about it, sharing awareness, and funding research, we can change outcomes for families facing this fight today.